Every chronic illness forum I've come across has an article like this, "A Day in the Life of a Someone with *insert illness here*". I find them interesting, thinking to myself the entire time how much I relate to the article. I see the similarities of their life and of mine, taking into account that someone has finally put into words what I've been feeling since my senior year of high school. For me now, as a sophomore in college, I struggle to put into words what I am feeling as an undiagnosed patient. Not many forums have an article on a day in the life of the undiagnosed, so I am going to put one out there for you! Now, this is my view as a college student. As many of you know college is a strange period in your life. You're so incredibly stressed you can feel your mind pushing at it's mental boundaries yet so incredibly happy that you can't imagine yourself doing anything else. For a chronically ill student, the feeling is still the same, but the stress is intensified by the fact that you are well, ill. Enjoy a day in the life of an undiagnosed chronically ill college sophomore sorority girl!
8:00 AM: My alarm goes off, telling me I need to take my first round of meds. I do a quick inventory of what my body is feeling because this will determine how often I'll take motrin and tylenol throughout the day. I roll out of bed slowly and trudge over to the other side of my room. Careful to not wake my roommate, I pull out my medicine from the fridge and pop it in my mouth along with the other 7 or 8 pills I take.
8:10 AM: During the week, my sorority only serves breakfast on Tuesday-Thursday, so on those days I throw on a sweatshirt and sweatpants and walk downstairs to make myself a cup of tea if my tonsils are swollen and pick over what they're serving because my nausea medicine hasn't kicked in yet. I curl up in a little ball at the table with a few other friends and nibble at something that I know will sit well. I am never, ever fully awake for breakfast and have literally fallen asleep sitting there with my friends. Then again, I do have chronic fatigue, so when am I not exhausted?
9:00 AM: I drag myself upstairs and snuggle under my covers for a little while longer. I try to keep myself awake by checking my email, Facebook, instagram, etc. This gives me some time to let my pain medicines kick in so I can move a bit quicker. I also just really love my bed.
10:00 AM: I through on comfy clothes and scrape my hair up into a messy bun or side braid. I live for big t-shirts and nike shorts, which I know everyone hates, but trust me, it's the best outfit choice I've made in a long time. Bloated? Can't tell. Did I sleep in this shirt? You'll never know. My sorority girl-ness shines through in my outfit choices during the week.
10:30 AM- 3:30PM: These are my normal class hours. Sometimes I'll have hour breaks to run back to my house and eat, possibly rest for a little bit, but I try to stay up and productive so that I can take my mind off the fatigue. I also have to remember to take another dose of medicine, otherwise I'll never make it through sitting in incredibly uncomfortable chairs all day. During class I do my absolute best to stay focused and take notes. I use little tricks to keep my mind from wandering and right down as much as possible. Currently, brain fog makes it difficult to remember everything I'm learning or the exact term for an idea, so I push myself to write everything down and review a little bit before class to help myself out.
3:40-5:30PM: Afterclass I take another moment to see how my body is doing. I look at my planner and see what else I have scheduled for the day and what I need to have done for tomorrow. I stay as involved and active on my campus as possible, holding positions within my sorority, but also on campus councils and organizations. If I'm not feeling well I try to lay down for a little while and give my body a break, but if I'm doing ok I try to knockout as much of my homework as possible while I still have energy and can remember clearly what I learned that day.
5:40PM-11:30PM: I spend this time eating dinner, doing laundry, running errands, studying, etc. I shower which takes a ton of energy and then I spend time organizing my medicines for the next day, packing on ice or heat where I'm aching, and honestly just trying to recuperate from the day. I hit a wall everyday where I just can't go anymore, all of my spoons are gone. These are the times I let myself curl up in bed with Netflix and zone out. By this point I know that I am done for the day, anything that didn't get done is set aside for tomorrow, and I begin the cycle all my day all over again.